Links
Useful links for Moebius Syndrome are below. Let us know if you have any links you think would be worthwhile.
National Moebius Organisation Websites:
US Moebius Syndrome website
Italian Moebius Syndrome website
French Moebius Syndrome website
German Moebius Syndrome website
Spanish Moebius Syndrome website
UK Moebius Syndrome website
African Moebius Syndrome website
Tendon Transfer Shows Promise in Correcting Facial Paralysis - Smile Surgery article by Charles Bankhead, Staff Writer, MedPage Today (16/07/07) forwarded to us by Dawn Maitland, Belfast.
The Mystery of the Missing Smile - article downloaded from www.science.org. Contains pictures of smile surgery and snippets from the conference held in Maryland, USA (Summer 07).
Journal of AAPOS - article by Miller & Stromland 1999. Supplied by Dr Jayne Jubb at the University of Groningen in the Netherlands.
Cognitive evaluation in adult patients with Moebius Syndrome - 2004 Supplied by Dr Jayne Jubb at the University of Groningen in the Netherlands
Moebius Syndrome - (paperback book) A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References.
Kids with Facial Paralysis - this is an Australian MSN site. It is like our Forum. The people oare really friendly and helpful.
Moebius and I - a brand new support group set up by Bob Emery, based in Watford Hertfordshire. The group is for families and adults with Moebius and other facial related syndromes.
A guide to understanding Moebius Syndrome - a publication of the children's craniofacial association.
Having problems with doing up your shoelaces? Have a look at the following websites, they might have something to help. Greepers or Amphibian King.
UPDATE is Scotland's National Disability Information Service. They aim to improve the quality of life for disabled people in Scotland by enabling information providers to offer accurate, up-to-date and relevant disability-related information.
S.K.I.P Special Kids in Play offers practial advice and support to families in Scotland and also a chance to meet other families with additional support needs in East Lothian.
The Genetic Interest Group (GIG.org.uk): supporting those affected by genetic disorders.
SCVO - The Scottish Council for Voluntary Organisations is the national body representing the voluntary sector.
Colliscurve - Unique toothbrush for special care dentistry.
National Voices - will change health and social care by bridging the divide between people and policy-makers. If you wish to receive their fortnightly e-newsletter you can email mark.leach@natiionalvoices.org,uk
The many faces of Moebius Syndrome - a new site created by Tim Smith for people with Moebius Syndrome and and their families.
If you would like to make a donation please go to the donation page where there are a number of ways to contribute to the trust.